"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Sunday, June 28, 2009

Living by a routine

The kids and I returned home today from a short trip across the state to a friend's wedding. That means that the last 3 days have been nothing close to our normal routine...and surprisingly we only hit a few snags along the way.
If you know our family, you know that our life revolves around a routine. Not only do my children, especially Brycen, thrive on routine, but I feel that every child needs at least some part of the day that they know stays the same. The routine also allows me to set aside certain times for me to get some work done (easier said than actually done on most days) as well as know when I will get a much-deserved break some days!
Of course when we travel, the routine is pretty much thrown out the window...except meal times (and usually nap time) which I work hard to ensure are as close as possible to the normal routine of home. I have run across some people over the last year that have seemed frustrated with the fact that Brycen is used to eating or napping at certain times, and sometimes that may mean we cannot participate in a certain activity if it is at one of those times. But those are the things we sacrifice for our children and meeting their basic needs will always be more important than activities.
This is a rundown of how much I have to prepare for a couple days of travel, hence a change in routine. I always, always have snacks/juice with me whenever we are traveling outside of Storm Lake city limits. There is also very limited times of departure that work with Brycen's schedule (Aubree can adapt much easier to changes than Brycen obviously)...we either leave first thing in the morning, immediately following lunch (which is around 11:15/11:30), or immediately following supper (which is 5:00/5:30ish). After supper is a last resort for our family, and is usually used only when we have to leave after Mike is off work and it is pertinent that we leave that day and not the next morning. Sometimes I do not know what time we will leave until the night before or the morning of departure as I have to weigh out how Brycen slept that night, the mood he is in, and other factors. I also have to plan for any meals on the road, as we do not have the financial means to just run through a drive-thru when it is most convenient as most people do when they are traveling.
For Kenzie's wedding this weekend, it was necessary that Brycen nap in the car on the way there, which is not usually a first choice as he doesn't sleep as long as he needs to when we are driving, but it is doable. I also planned a little window of time for when we arrived to allow him to walk around to get rid of energy pent up from sitting in a carseat for a couple hours. I always have a diaper bag full of snacks and quiet toys to keep him occupied during church-type events. I had determined that the dinner probably wouldn't be served until well after his 5:00 window and of course I was trying to prevent melt-downs, so I had a lunchable packed in case it was needed. I also packed some of the bribery items that I frequently need for Brycen...a baggie of M&M's and extra sippy of juice. Of course, despite all of this planning, it never goes as I would like...but I guess it went better than I really expected!

1 comment:

  1. I think it went pretty good. Just wish Brycen would have gone on walks sooner with me during the reception to give you a break but eventually he did at the end. Brycen was super good during the wedding ceremony, though. He played with the little tractor and train cars while he ate fruit snacks. What more can you ask of an almost 3 yr.old little boy. Thanks for asking me to go a long and help you. love you, mom

    ReplyDelete

Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.