"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Sunday, July 26, 2009

Melatonin update

We have used Melatonin (3mg tab) every night for the last 8 nights. Knowing that it may take weeks to work (if it works at all), we are very happy with the progress so far. On the second night, we noticed he became sleepy faster than without. He has fallen asleep faster and without as much whining since that second night. He has woken during the night 4 times and has slept through the night (9 hours+) 4 times. We are not getting too excited yet as he does have these spurts every once in awhile where he will sleep through for a week and then he has weeks of not sleeping through at all.
As for behaviors during the day following the last 3 nights in a row of sleeping through the night...have not decreased at all. We still find ourselves constantly redirecting him away from tackling, headbutting, and pulling on Aubree, wrestling and throwing toys, spitting, his constant self-stimulating behaviors and more. The good news is that over the last couple weeks, we have not had to strap him into the high chair for time-outs (I hope I didn't just jinx this!). He seems to get the point if we sit him on the couch or on his bed and block him so he can't get down. Then it all starts again 5 minutes later... I guess 5 minutes of good behavior every couple hours is pretty good for a 3 year old in this situation! I'm looking forward to school starting in a few weeks and have high hopes that pre-school will have a positive impact on him and our family!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.