"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Monday, December 7, 2009

"It's beginning to look a lot like PROGRESS!"

Mike and I spent some time yesterday discussing how the heck I was going to keep a structured environment for Brycen for 2 WEEKS over xmas break so that he could transition back to school with no problems (while also continuing to work from home and complete all of my job expectations at the same time). Through this planning and worrying, I definitely realized why I did not go to school to be a teacher. I think, rethink, and then get distracted...and forget that I am supposed to be focusing on Brycen and his learning (not my sanity!).
So, I am enlisting my friend and co-worker, Megan, to help produce many pictures from Boardmaker that resembles any type of activity we have or may be able to do during those days. Megan attended a recent training with my Mom and I on picture schedules and communication with children with autism...but more on that in a later post. While she works on that, I have been forming a schedule that starts at 7am to 5:30pm each day. Since Brycen's attention span is very short and he has a hard time transitioning from a beloved activity, I am forming this schedule to include many of his favorites (IPTV first thing in morning, a train movie at rest time, blocks, musical instruments, Curious George at 5) as well as many things he needs to work on (flashcards, sorting, board games). I also plan to utilize Angie as much as possible, as she is home with Ellie all day and structures her time with centers and various projects (did I mention that she has a degree in education too!).
So among all this planning, I decided to try a few things out with Brycen that we have not tried in some time. Brycen received a new wooden train puzzle with sound from Kelsi last week. He LOVES it! When we first started putting it together, I noticed how fast he figured out where each piece goes (compares the picture on the piece to the picture on the board that it covers). So I decided to bring out some of the old wooden puzzles we have. He used to wrestle around the pieces, so these were put away during that stage of his (even though that stage has never ended). Well, he surprised the heck out of me! The kid can do every single one of them! He does it so fast and just needs help fitting the piece the right way, but he knows exactly where each of them go!
So, then we decided to break out the Memory game that his cousins gave him since they are too old for it now. I took out 8 different pictures that I knew he would recognize and their matches and placed them on the floor face down (of course Brycen helped me put them in an exact line too...my precious OCD boy!). We worked on taking turns, recognizing the matches, etc. He did fairly well with this...definitely better than I expected! I have faith that if we work on this daily during xmas break, I can have him to the point of playing more boardgames suited for his age (don't tell him, but he has a couple fun ones coming as gifts for Christmas).
So, then I found a pack of flashcards that his Aunt Brenda got him with simple pictures of things on them. I once again took out the ones I knew he was familiar with and also a few that I thought would be easier. Here are the ones that he said spontaneously: shoe, ball, and boat. He successfully imitated the following (with exception to the fact he doesn't pronounce every sound in the word, but close enough that we know what it is): fish, car, book, cake, hat, moon. He did try to imitate the rest though it sounded nothing like the word, but it was great that he tried and was being so very attentive: sun, sock, bear, pig (noise), cat (noise), baby, dog (noise), cow (noise), drum. Of course after every card, he had to line them up on the couch and I was not going to get his attention back for the next card until they were lined up right!
So to summarize the entire post...he has sneakily been learning things over the last couple months and I know he loved our excitement at watching him show us these skills and to hear his sweet voice trying to say these words. Soooo..."it's beginning to look a lot like progress!"

4 comments:

  1. I'm just amazed! It must be an overwhelmingly wonderful feeling to know all that hard work and effort is paying off.

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  2. Brycen has alot stored up in that bright little brain of his and there is so much more excitement to come for you. I know he will continue to bring surprises to you and each accomplishment is a milestone. Can't stop smiling at the excitement I can feel from you in this post Melissa! Yipppeeeee for Brycen and for his family!!! xo Nancy

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  3. Keep going kiddo! Great Job Mom and Dad!
    Monica

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  4. Melissa - I am so excited for you guys...okay jealous too ;) I can't wait to meet Brycen! All those words and the ability to imitate and match and all of this - WOW!! He has a lot saved up and sounds like he's really pulling it all together in a great way. Having the imitation opens such a window of opportunity. Have you thought about hand plays and songs - those are awesome tools to work from. Open shut them...itsy bitsy spider...that kind of thing. You can really get their attention - even for Ellie and then if he can imitate he will have a blast! There are hundreds of them online - or just add simple hand plays to little songs. We even turned some into books hoping Ellie could look through those and eventually imitate. We just don't have the imitation - so it doesn't work for us. We need to get together again soon! - Angie

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.