"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Tuesday, April 27, 2010

The most recent meltdown

Frustrated! That's what I have been all day!
Brycen slept through the night last night so you think he would wake up and go to school in a great mood...um, yeah, sure...not this morning of course! When I walked him out to the living room to get his shoes, the crying, throwing, and hitting started...and we still have no reason why it really started. The shoes were thrown, Daddy pulled him onto his lap and the hitting started while I struggled to get his shoes on. Then it seemed like he calmed down for enough time to put his jacket on...but then the backpack went swinging and flying to the floor and he refused to pick it back up. He walked out to the car fine but as soon as we pulled up at the school, he began kicking the back of the front seat and screaming. I talked him down and we walked into school thinking it was all over...but of course he had more in store for me (once again not having a clue what is going on or what triggered this). He stopped in the middle of the hallway and looked around like he was going to make a run for it in the middle of all the arriving students and parents. I was able to get him back on track to take off his jacket and hang it up, but then he took off running into the classroom. I followed and asked him to do his "work" at the table, but he screamed and ran again from me. It seemed like he was going to the table to do the "work" so I slowed down...big mistake, Mommy! The lunchcards and namecards went flying all over the floor with one big sweep of his arm...sigh, sigh, sigh. While his teacher looks on, I lean over and do hand-over-hand picking up the cards with him, thinking the entire time that "isn't this what the teachers get paid for"! Sometimes I wish I was like all those other parents that just walk their kid in and leave, but since I'm a parent that actually likes to see my child succeed and require him to interact back with me by having him say "goodbye" to me, I guess the teacher doesn't jump in to help at those times. It seems she has plenty of other "advice" about him and what to do, but of course the few times that I just want to walk out of the room and have a break from the screaming, hitting, throwing is the time she sits at her desk and "watches."
So, the moral of the story is...we can NEVER pinpoint when a meltdown will happen. We can prevent, we even had him in his regular routine this morning, he slept through the night...everything we try so hard to do to help him succeed and achieve on a daily basis...and then something like this happens and you wonder "where did I go wrong this morning." Oh, yeah, I guess I could have been more patient at the start...but I'd like any parent that deals with this regularly, with no warning, with a child that can't communicate, a child that most symptoms cannot be lessened with medication...those parents are free to jump in anytime and tell me that being patient 24/7 is easy! Otherwise, for those others that read this...this is our life! This is why we don't go many places, this is why we don't attend many family functions, this is why we have to bend over backwards and plan and prevent and prepare for any possible thing...and once again, this is our life (and this was a very, very small meltdown, so you can imagine the next step up, and the next, and I'm guessing you probably can't even imagine the worst unless you've been there and done that with a child like Brycen)!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.