"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Friday, December 24, 2010

Believing in Santa

How do you help a child with Autism believe in Santa? Aubree is starting to understand at 2 1/2 so we will start the whole Santa tradition next Christmas for her, but Brycen shows no concept of what we talk about. I know that visiting Santa at the mall will not probably be possible for him...he won't even go near family members and friends a lot of the time and he is deathly afraid of mask-like costumes!
I want to get a book over this next year to read to him (if he'll pay attention long enough), maybe enter a social story into his AAC device when we get it so it'll play out the Santa scenario for him, but since he is mostly non-verbal, how do I know if he gets it?
The other thing I worry about is that people with Autism are very literal thinkers, so I have read that they either start questioning everything about the Santa tradition very early on...or they are huge believers even until teenagers because they believe everything their parents tell them.
I want him to believe! The symptoms of Autism have already made him miss out on other childhood things and he's not even 5 yrs old yet! I don't want him missing out on this magical belief in Santa Claus! Those with experience and older children/adults on the spectrum, please help! Tell me your stories and I hope in a few years, I'll have a new story to tell by learning from yours!

Merry Christmas!!! Thank you for all of your support over this last year!
Much love to all,
Mike, Melissa, Brycen, and Aubree

1 comment:

  1. Merry Christmas to your family also!! Thanks for the blog!!! I love to read about your ups and downs! It helps me through knowing I'm not alone!!!!

    ReplyDelete

Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.