"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Wednesday, March 23, 2011

Light It Up Blue- April 1 & 2

In honor and support of all children/adults and their families that are fighting this battle, will you please "light it up blue" on April 1 and April 2? All you need to do is get one blue light bulb and place it in your porch or another outdoor light and turn it on both of these days. Something so simple will be so meaningful! You could even go the "extra mile" and wear blue on April 2 in support of World Autism Awareness Day:)
Here is our blue lightbulb...and I will be sure to take a picture of us lighting it up blue those days!
I would love if you could email me a picture of you lighting it up blue and I will add all of those on a future blog post to show everybody just how much support we have in our family and friends! Will you take this challenge and support awareness of how Autism is affecting so many people at such an alarming rate?
Here is a link to the page that explains all about this event: http://www.lightitupblue.org/

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.