"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Thursday, January 19, 2012

Keeping up in Kindergarten

As you all know, Brycen spends a good portion of his day in the kindergarten room with his typical developing peers with the assistance of a 1:1 associate.  When we originally requested this, our intentions were for him to hopefully gain some speech and social skills training from being around his peers...as well as build awareness among the younger generation that having disabilities doesn't always mean you have to be separated from the bunch.  I think Brycen is overall succeeding in all of these areas and from what I have seen and heard, all of the other kids just see Brycen as himself.  I love that!!

What we weren't expecting with Brycen beginning kindergarten is for him to be able to keep up with the majority of the educational aspect of kindergarten.  Kindergarten is so much more advanced these days...they are reading simple books, counting to 100 (and counting by 10's!), and learning far more than I can ever remember knowing about kindergarten.  The teachers and associates keep us up to date very well on Brycen's progress and his worksheets are sent him on a regular basis for me to see what they are doing. 

When I visited the school last week (purpose was to actually fix his "talker"), the special education teacher was working with Brycen on "number sentences" using dominos.  What an awesome tool to use!  Of course, convincing Brycen to start doing his "work" is the hard part...but once he gets started he seems to fly right through it!  Before I left, he had then ventured back over to the kindergarten room with his associate where they were working on math as well.  This time, the kids were given a worksheet to fill in to work on number sentences that equal 6. 

Here is what Brycen's completed work-sheet looks like:


With the help of the associate, Brycen would "roll" his colored beans and then count how many were red, color that many in a box, count how many were blue, color that many in the box and then form a number sentence from that.  I'm sure you can see that Brycen is actually writing his numbers as well...with the help of the associate in some of the boxes, but he clearly wrote the top right number sentence himself of 3 + 3 = 6. 

I never ever expected Brycen to be able to keep up with his peers in these areas!  I know it takes him longer to complete these things and he needs an associate at all times to keep him on task and to show him what to do, but he has come so much further just in the last 6 months than we were thinking he would come in a couple years.  Originally, we were thinking about having him repeat kindergarten but I'm not so sure that is going to be necessary depending on his progress we received from his next IEP in May.  I'm confident he will continue learning (at his own pace, though it doesn't seem to be very far behind) and though he may not be able to talk to us about things, it is obvious that he is taking in more things around him than we ever imagined.

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.