"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Thursday, August 9, 2012

The Slap of Reality

All special need's parents can relate to those moments when you feel like you are slapped in the face with reality.  They don't seem to happen as often anymore for me, but I felt it yesterday.  I was sitting in the waiting room of the therapy clinic while Brycen was in his one hour speech appointment.  Nothing specific brought it on, but I immediately thought "How did this happen?  Why did it happen to us?" 

The "why" question rarely pops up anymore because I know there is no use in trying to dissect the entire happenings of our life, my pregnancy, the first two years of Brycen's life, etc.  It's just not worth it when the present takes so much energy and emotions to deal with by itself.  Most of my "slaps" tend to be "how" now.  And it's not always negative but may be "how can I make this easier for him?" and just how to handle the day-to-day stressors for both him, us, and his sister. 

So, here I was sitting in the empty waiting room and these two questions go through my head.  I'm not quite sure why it happened then because he's been making slow but fabulous progress in so many areas and I am so proud of him.  Of course my eyes fill with tears and I just hope that the receptionist doesn't notice or that none of the other therapists walk through the room until the tears dry up.  Because I hate when someone outside of my immediate family sees my vulnerability about this.  I don't want people to think of me as anything but strong for him.  I WANT to be strong for him...but sometimes reality just slaps me in the face and it gets the best of me. 

We have no clue what the future holds.  No doctor or therapist can tell us what the next year, 5 years, or 20 years will look like for him.  So, I just cling to the present.  Try not to dwell on the past and the "why" and "how", and though the future will haunt me frequently, I also try not to dwell on that.  The present is already taking over so much of our life that I just don't know what more I can fit in right now. 

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.