I have been hesitating to blog about Brycen's recent progress...because I worry that once I get too excited and make it known in words to so many people, that it will stop. I know I should just be happy that he is making progress, and I am...but it is still so hard grasping just how far behind he is. He should be able to talk in sentences, identify colors, count to 10, take turns, share (at least a little bit), and not need so much attention and supervision being that he will be 3 1/2 in a couple weeks. But he is still functioning at about a 16-18 month old level.
Now onto the good things! Over the last week in school, despite many days being cancelled for snow, he has shown better listening skills at school with directions, he began matching the letters of his name, and he began identifying various pictures through pointing that we didn't know he recognized. Each week, the teacher is developing a list of words/pictures they will work on that week. This week's list has a few he already knows and can say such as ball and car, but has a few difficult ones like chair and house that he has yet to recognize or imitate.
His imitating of sounds and words has come so far in the past couple months and he gets so excited when he knows he is doing something right! And he even has a cheerleader by his side when we work on puzzles or flashcards as Aubree loves to cheer and clap for him every step of the way. They have almost reversed roles in that Aubree is acting like the older sibling now and helping Brycen along!
With matching letters of his name, they have a paper strip in front of him with his name spelled out..then they put the different letters of his name scattered on the table in front of him and he must grab the letter B and put it on the B on the strip in front of him. They said when he worked on this, he did it several times in a row correctly! This boy has definitely been holding out on us!
I feel like we are on the edge of a breakthrough and I don't think it is because of anything I am doing specifically. I really think that all the time and resources the teachers have at school, as well as my parents visiting for 5 days and constantly working on words, puzzles, flashcards, and fun activities with him is what is making his progress so evident at this moment. I was completely ready to work on many things with him over Christmas break, but I definitely don't have the patience to sit down and do more than a few minutes of something with him...I get easily frustrated with his lack of attention span and his aggressive behavior that I just give up on trying to work with him on certain things. I think he also is very aware of how he can drive me nuts, and he does it on purpose just like any other kid that knows how to push their parent's buttons. He definitely understands more than what he can express!
Please keep Ellie, Angie and the rest of their family in your thoughts and prayers as they are going through a very difficult time. Not only is Ellie cycling with her physical health with her reaction to gluten, but Angie and Ellie just also endured some of the same testing we went through with Brycen back in August. I can distinctly remember my feelings and emotions that day...I remember calling my Mom in the middle of the morning in IA City and telling her I still had hope that they were going to tell us Brycen was just fine, would catch up to his peers in no time, and that it definitely was not Autism. It has taken us several months after that appt to grasp the extent to which Brycen is behind and what lies ahead of him and us as a family. I hope that Angie and Ellie are able to get through this difficult time and come out on the other end stronger than ever!
"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller
Thursday, January 14, 2010
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Autism and Our Family
"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
Way to go Brycen! You've come a long ways in the last months. All of us that love you just need to keep working with you and praying for you. Melissa and Mike, keep holding your heads up as you are the best parents for Brycen. You're doing an awesome job. God bless you all! All my love, mom and grandma O.
ReplyDeleteYou have every right to be thrilled! It's so exciting to see and hear. It gives the rest of us hope that someday Ellie will do the same!
ReplyDeleteHugs! ANGIE