"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Monday, June 14, 2010

Thank you for the donations!

Another big THANK YOU to all those who donated to the walk! When we set out to form this team and set our donation goals, we chose $2000 as we didn't want to set the bar too high, though we wanted to challenge ourselves for a very important cause. As of today, from what has already been added to our team page and from what I know is in the mail, we are well over our $2000 goal and are actually very close to reaching $3000. How amazing is that for the first year of Team Brycen?!

Another thing that Mike and I discussed is that we wanted to challenge ourselves to donate as much, if not more than the top amount donated by one person...we had three very, very, very generous donations from the following people that set the bar high for us to save this amount:
Patrick & Erin O'Connell (my little brother and his wife)
Janet & Mike Blad (my aunt/godmother and uncle)
Teri & Gary Roushkolb (my brother in law's parents who have only met Brycen a couple times)

Thank you to all 3 of these couples, as well as every other person that found it in their heart (and checkbook) to donate to Autism Speaks! As many of you may have read, a recent breakthrough was made in the area of genetics to help pinpoint what children are more likely to have Autism...Autism Speaks had a big part of funding this research project! Your donations will continue to help research incredible things like this so that one day there can be a cure for Autism!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.