When I first started this blog, I wanted to be honest about the ins and outs of raising a child on the spectrum. While I have shared a few of those very difficult moments with you...I have chosen to actually keep quiet about some of the grosser ones (AKA- embarrassing!) because I really don't want people looking at Brycen and judging him off of this type of behavior. Today is one of those days where I am going to be honest because I am a little in "awe" of what just happened. "Awe" is not being used in a positive way either!
While attempting to pack up some of the kitchen during rest time (Aubree & Mike napping upstairs), I noticed that Brycen was standing by the couch instead of laying on it while watching his train video. This typically means he has a poopy diaper as he doesn't like to sit in them. So, I had him lie down noticing that he had messed with his diaper so much that he had smeared some down his leg and shorts. No big deal...right?! Clean him up, put on new pull-up, put shorts in laundry room...this has happened a million times with him.
About 30 minutes later, I was yelling at him to sit back down instead of flapping by the TV. When he wouldn't listen, I went over to him to find that poop was now on the floor and all over his feet. Seriously, Brycen?! Didn't we JUST finish changing you?! So, I once again, clean him up, put on new pull-up, and go back to packing the kitchen.
Within another 45 minutes...well, you guessed it! A THIRD time, but I didn't catch it fast enough before it was all over his legs, hands, floor, etc. I scrubbed him down again, meanwhile lecturing him about "telling" me he has a poopy diaper and needs to be changed...of course, I know he doesn't quite understand all of this. Obviously since he is almost 5 years old and has no interest in potty training (FYI: Boys with classic Autism typically are not potty trained until years after their typical peers.) It just makes me feel better to lecture him so I feel like maybe, just MAYBE he will understand one word of what I am saying.
Now, that wasn't so bad, was it?! It gets better though. This next thing is what we were hoping was a "phase"...but it has turned into about 5 months of behavior that is not getting better. Brycen has finally realized where his male anatomy is located and is completely infatuated with "it". While this is something a 1 1/2-2 yr old is typically "exploring", Brycen may be almost 5 yrs old but his developmental level is that of an 1 1/2-2 yr old. At first, we attempted to ignore it and would ask him if he needs to use the bathroom, which we know he doesn't since he doesn't comprehend potty training right now. It continued to get worse to the point where he was pulling his pants down in circle time at school, at the check-out in Fareway, and pretty much every other place we go as he has no comprehension that this is a private issue. He loves "it" so much that we dread giving him a bath and even changing his diaper because it becomes a big ordeal over keeping his hands above his waist. I can guarantee that "it" will make an appearance at least once during the Autism walk on Saturday!
Reality is that these are things that Brycen does not comprehend. Reality is that we don't know if this will get better or worse. Reality is...this is Autism. Autism is fabulous, isn't it?!
"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller
Thursday, June 9, 2011
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Autism and Our Family
"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
Bless you, girl! Autism isn't always pretty -that's why it's the "joys AND challenges", right? Xo
ReplyDeleteHoney, you're gonna hate me in just about a minute, but hear me out. This too shall pass. Seriously. I know right now it seems like he'll be whippin' out his weiner forever, but he won't. Our kids aren't stationary. This is one phase in his development, and he will progress in this area just like in everything else. It may be slow going, but it will happen eventually. In the meantime, congrats on his body awareness! (Just a reminder that throwing things at your computer will not hurt me--it will only hurt you!)
ReplyDelete