"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Saturday, February 4, 2012

“A goal without a plan is just a wish.”



Obviously Brycen is making progress across the board because we have changed his goals recently for Occupational Therapy and Speech Therapy at the clinic, as well as Speech Therapy at school.  Occupational Therapy is mostly working on fine-tuning the skills he has...such as completing the entire act of zipping his coat (pretty much done), as well as building strength in his arms throwing overhand, working on decreasing the size of his writing skills (can write all letters and numbers, but size is quite large and all over the place), and then learning how to write his phone number and address (he can already find the info on his device, but we want him to know how to communicate it without his device).  In both Speech therapies, we are focusing on more functional communication and using his device to form phrases (stringing at least 2 buttons together) and to make more than just requests. 
After discussing this with multiple team members this week, I came home yesterday mentally exhausted on how to start all of this.  It seems easy, right?!  Just program a bunch of words in a page on the device?!  Well, to be honest, it's so much harder than that.  I thought I knew not to take spoken language for granted a couple years ago...but I'm starting to REALLY see not to take it for granted as we progress along with his usage of the AAC device, but not progress along much with his spoken language skills.  Programming basic words in the device is easy...it's categorizing them into pages that he will understand (verbs, nouns, adjectives), and keeping up with what typical 5 yr olds comment or discuss with the people around them on a daily basis, while also not overwhelming him with the entire process.  Using an AAC device just isn't "natural" like spoken language is to the majority of people...there is a learning curve that goes much deeper than the curve associated with spoken language.
I spent this morning googling a bunch of websites about "core language"...and was lucky to stumble upon an awesome site that actually focuses on the stages of language and how to keep adding on to each stage as he learns!  Very excited to research this more and get started on this new "stage" of Brycen's development with his AAC device!



So like the quote above says...we can't set a goal without a plan on how to achieve this goal, otherwise it's just a wish of what we want for him!  It's about our action and motivation to achieve these goals WITH him!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.