"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Monday, April 4, 2011

Brycen and his Communication Device!

Brycen has been awesome with his communication device since his came almost two weeks ago! We are so blessed to have had insurance cover this so that he can have a way to communicate more than his grunts, pointing, and yelling:) He has been taking it to school each day and to therapy twice per week and is so consistent with it. Of course the therapists are excited to use it with him since they had a big part in helping us get it! The teachers and school SLP are also very excited and have been brainstorming various things for me to program for their use at school. We were so excited to read the great note that his teacher wrote in his communication book today that goes back and forth to school in his backpack. "Another child was grabbing at it, Brycen pushed the button that said 'This is my communication device to talk...' He was standing up for his rights and knew what he wanted to tell her." Up until this time, the device has just been used to make choices and encourage various requests like please, more and thank you. This is the first time that we have heard/observed him using the machine for functional communication!! How amazing is that to not only have him stand up for what he knew was his, but he also did not choose aggression to communicate (which is usually the case)! ABC update: He continues to work on this multiple times per day and is getting so good at it! We tested him on an ABC game on the computer where it will say the letter when he pushes it on the keyboard...and he actually chose to do it in order of the ABC's with my help on only 3 of the letters! So not only can he voice the sound of the majority of the letters, but actually does know the order they go in during the song. He can also type BOTH his first and last name on the computer or the keyboard on his device accurately about 75% of the time. He's great at first name but still learning the entire last name and sometimes wants to put the R before the E or forgets one of the M's. We are so very proud of him and his accomplishments over the last several months!!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.