"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Thursday, April 28, 2011

Brycen made it into Autism Speaks Top Photos for Light It Up Blue!

Here is the link to see Brycen's picture that was rated the top second picture out of thousands that were submitted to Autism Speaks in honor of Light It Up Blue for Autism Awareness in April!  It's so great to see his face out there representing how Autism can affect anybody...there isn't a specific look to Autism as you can see.  It is out there everywhere you go!  I want to give credit to my brother-in-law, John, who took many pictures that day to honor Brycen and his fight, as well as all who came out to support that day to walk.  I know I've said this before, but I can't say it enough...Thank you, John, for capturing the beauty of my little boy!
http://gallery.autismspeaks.org/gallery/892?utm_source=social-media&utm_medium=Facebook&utm_campaign=Gallery

In addition to that, we are well on our way to meeting our goal of $3000 for Team Brycen.  I have attached another link that takes you directly to the team page on the Iowa Walk Now for Autism Speaks website.  We have many walkers signed up and many, many people who have donated from immediate family all the way to people that we have never even met!  Thank you for all of your support...and it would be great if we could see that number go ABOVE our goal again this year:)
http://www.walknowforautismspeaks.org/faf/search/searchTeamPart.asp?ievent=447324&lis=1&kntae447324=3DB34045D82E43CB8B00563398FA3B7A&team=4010797&tlteam=0

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.