"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Friday, April 13, 2012

Congratulations, Brycen!!


Brycen has officially "graduated" from Occupational and Physical Therapy at the private clinic for his 5 year old skills this week!  Great news for him!  In Occupational Therapy, he has recently worked on fine motor skills in many areas, muscle tone in his arms, writing his entire name and his grip on the pencil, and identifying/writing his address & phone number.  During Physical Therapy over the last 9 months, he has accomplished learning how to pedal, steer, and used the brakes on his bike with training wheels, jumping on both feet, balancing and jumping on each individual foot, balance across a beam, kicking with each foot with aim, and a lot of other stuff.  While there are still some skills that other 5 yr olds can do that he can't, we have felt he has caught up enough to his peers that it was time to discharge him from these two therapies.  Brycen will continue with his three appts per week of private Speech Therapy as well as his Speech and Occupational Therapy at school. 

While this is great news for his development and for our home schedule (going from 8 therapy sessions per week down to 3 is a huge difference in time!), it still presents with some extra emotions for us.  The possibility for regression is high for children with Autism, and additionally for children who have already shown regression in their past development.  We aren't as worried about this while he is in school because so many of these skills are reinforced consistently throughout the day, but when summer comes it really worries us that he may "forget" some of these skills.  Luckily, we have the option to have him re-evaluated at any time if we would be concerned about any regression or when he turns 6 years old and any new skills for that age are not emerging on their own. 

Thank you to all of his therapists (and entire team!) over the last several years who have contributed so much to his progressing to this point!  Their care & obvious dedication to wanting to help Brycen achieve, and their continuous support to us as his parents are what made this possible.  We could NEVER have done it without them!

2 comments:

  1. So awesome and happy for you!! ((HUGS))!!!!

    ReplyDelete
  2. Brycen, you are an amazing little boy. Congratulations. :) Your Aunt Barb loves you very, very much.

    ReplyDelete

Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.