"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Tuesday, May 22, 2012

Brycen & Mommy's Special Day

Galesburg, IL train museum---May 22, 2012---Brycen & Mommy
Since the kids are out of school already, I decided I wanted to spend some special time with each of them this week with G'ma & G'pa O's help to watch them separately so I could do so.  I wanted to plan a special trip with each of them for part of a day to someplace I think was unique to each of their likes.  Of course everybody knows Brycen has an obsession with trains, so what better place to take him to than a train museum.  Lucky for us, the town we are living in is on the Eastern side of the state which is quite close to many train depots and museums, so I chose to take Brycen to Galesburg, IL for a little day trip.  Any mention of going to see trains produces immediate happiness in him!!

So after therapy, we packed a lunch for the car and off we went to Galesburg for the afternoon.   It's about an hour and half but with Brycen that time goes by so fast as he loves being in the car especially on the interstate where he can watch semis all day!  The only "pet peeve" of his is when we are passing another vehicle...he does NOT like us to be in the left lane for too long and will begin making unhappy noises and pointing to the right lane as soon as he thinks we should move back over.  He's getting a little better about this but you can tell it causes him some anxiety :(

As soon as we got out of the car and was walking across the street to the museum, a train whistle could be heard not far away.  Brycen watched as the crossing lights started flashing and started tugging my arm very hard to walk faster! 


After the train went by, we went into the museum, but unfortunately cameras are not allowed inside.  Luckily she said I could take pictures outside on the train cars and engine that we could tour with one of the guides.  After about 20 minutes of watching a small train layout inside (and I talked to one of the workers who believes she has a 2 yr old grandson that has Autism), we went outside with one of the guides for the tour. 

Into one of the train cars

Ringing the bell

Finally looking at me for a picture in front of the engine

In the caboose

Taking the wheel...choo choo!


Holding my new pull back train from the gift shop (and posing for mommy!)
 After the museum, we ventured next door to the actual train depot where we saw a few passengers waiting to board their trains.  During the time at the museum and depot, we saw at least 5 trains go by!!  We decided to walk across the street to the Discovery Depot which is a children's museum with hands-on activities. 

One of his favorite toys ever!

Climbing through a train "tunnel"

Tree house slide

Water room...wanting the duckie to float


Climbing the wall...this was as far as he would go and then fall down on the mat & laugh!

Of course he spent the most time at the train table

Cool set up where you roll golf balls down...

...and they come rolling back on the bottom.

Off to drive another train.

"All Aboard!" says Brycen
Before leaving the Discovery Depot, we watched another train go by on the tracks before walking down the block to a little French cafe called The Landmark (the staff at the depot said it was child friendly and recommended it for it's unique food).  Brycen was happy to sit at a table by the window and watch the cars go by.  Then we headed home for an evening treat at a local ice cream place.
Drinking pop at the cafe

Eating his grilled cheese and homemade potato chips
Holding onto the handle in the car...not because of my bad driving :)

Yummy chocolate ice cream at Yums!

I mentioned "seeing the trains"...

...then we watched the video on my camera of a train and he was all smiles.

VERY happy boy after his special day with Mommy!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.