"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Saturday, May 19, 2012

Walking For Autism 2012


Three weeks from today at this exact time we will be starting our 2 mile walk in support of Brycen and all others affected by Autism in Des Moines.  This is our 3rd year as Team Brycen and each year is more meaningful to us. 

As of today, Team Brycen has raised over $5100 meeting and surpassing our $5000 goal.  We will have almost 30 people walking that day in support of Brycen. 

Even though the walk takes a mere 45 minutes or so, the meaning behind that time lasts the entire year.  I know I've blogged in the past about how much this day means to us, but I don't think it can be said enough.  We have very few people in our physical life who truly understand what it means to be a parent to a child with special needs.  This will always separate us in some way from other family and friends...not in a negative way, but it just will.  Autism encompasses so much of our daily life...from the routine we have at home, to the places we can or can't go with Brycen, to who we allow to care for him.  I know there is a saying that a mother thinks twice, not just for herself but for her children.  I think parents of special needs children think three times...once for themselves, once for their child as a child, and then a third time as they take into consideration the challenges their child is presented with. 

Before, during, and after the walk on June 9, we are surrounded by parents/caregivers who "get it."  Not just for the moment, but for the lifetime.  Even though I don't know 99% of the people that will be at the walk, they are my "family."  Not that I don't cherish my blood family or my close friends, but there are different connections with this "family."  I don't wish for anyone to have to parent a child with special needs...but I do think belonging to the special needs "family" has made me a better person.  More understanding of differences in life and far less focused on the mateial things. 

Thank you for your past, present, and continued support of Brycen and our family!  We are grateful for each and everyone of you who has made a difference in our lives through prayers, donations to the walk, kind words of support on those difficult days, and cheerful words of encouragement on those positive days. 

If you would like to sign up to walk (the more the merrier!!) or make a donation in support of the team, this link will take you to Team Brycen 2012 fundraising page. 
http://www.walknowforautismspeaks.org/faf/search/searchTeamPart.asp?ievent=998348&lis=1&kntae998348=732D6DF1E1A8489DB2A59CFB8CD81991&team=4940637

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.