If you are a parent, you know how proud and excited you feel when your baby says their first word and how fun it was to hear the dozens or so others that come over the next year or so. Now, imagine what it would be like to wake up and realize your child can now only say a dozen words unlike the dozens from a month or so ago...and then within weeks, they can only say a handful of words. It's called regression...and until a few months ago, I never realized that is one of the first signs of Autism in many children.
Brycen's first word was "ball," besides Dada and Mama of course. Before he was two years old, he was able to say at least two dozen words and a few phrases...and then within a matter of weeks, he was only able to say a handful of words. It happened so quickly and within a few months after his little sister was born, so we just put the blame on not being an only child anymore. Now at almost 3 years old...he can say about 5 words spontaneously and another 5 or so with prompts from us. I remember so much about his first words...the way he said "bye"...he would drag it out and say "buhbuhbuh-byyyyyyeeee" and it was so adorable! He "lost" the word "bye" for about 6 months and only recently did he start saying it again (with prompts from us). "Ball" is the only word he has consistently said on his own since that first time.
This morning I had to get up long before anybody else to get ready for an early meeting for work. I had just finished showering and dressed and kept the bathroom door open in case he would wake up (by the way, this was a night that he slept all night long which only happens a couple times a week so Mommy was very happy despite being up earlier than normal). When I was brushing my hair, he came running out of his bedroom just like he does every morning and stops outside the bathroom. I said "Hi buddy...you slept all night long like a big boy!" and the sweetest thing came out of his mouth "Hiiiii." Now for many parents, this wouldn't be a big deal as this is one of the first words most children say, including Brycen. But in Brycen's case, this word was "lost" for the last 6 or so months and this is the first time I have heard it since then. I almost started to cry...but instead, I got down and gave him a big hug and said "you said Hi like a big boy." I didn't want to make a big deal about it as I don't know if it is here to stay, but to hear his sweet voice respond to my words appropriately and to say an actual word that can be understood is such a big deal in our house! I could not stop thinking of this moment on the drive to my meeting, during the meeting, and the drive home...and obviously I still can't stop thinking about it!
"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller
Friday, July 3, 2009
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Autism and Our Family
"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
Awesome! Those will be the sweet moments to look forward to when they happen.
ReplyDeleteThat's a very touching moment. Cherish those moments always, Melissa. I pray that more words will come to Brycen each and every day and that will give you lots of hope.Love you all!
ReplyDeleteHow cool! It's tough, but there will be so many moments like that! :) You and Mike are doing such a good job with him... AWESOME parents!!!
ReplyDeleteJen