"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Monday, May 24, 2010

Consistency=Progress

I can hardly believe how much progress Brycen has already made with the consistent 1:1 speech therapy! We had our 4th appt today (5th if you count the initial evaluation where they observed and attempted to test him)...and he already is doing two things that are part of his 5 goals they have implemented.
First off, most children/adults with autistic disorder require pictures to communicate. Brycen is familiar with pictures as we have been inconsistently using them for over a year now. The first step for children is to recognize the pictures and associate the pic with an activity or a task. The next step is the child pointing at the picture of activity they want to do or the picture of their next task. This is the step where Brycen has been with us (and assuming with school as they have yet to tell us differently). The next step in communication with pictures is that he hands that desired/task picture to the staff/parent to let them know what he wants or what is next. HE DID THIS TODAY! One of his goals is to choose an activity from two picture choices...and he actually picked up the picture and put it in the SLP's hand with a prompt, but prompts are always where the learning starts!
Secondly, we are all aware that Brycen's attention span is very minimal. It can be awesome sometimes with various enjoyable activities, but even that is never consistent. What he might do one day for 10 minutes is not what he wants to do the next day, and will only do it for a minute. So, the SLP has implemented a goal for attention span that they will split his session into 5 different activities and he will need to stay on task for the entire 5 minutes with that activity with the help of a timer. On Friday, they informed me that he actually seemed to understand what the timer was meaning even though they had only been using it for 3 sessions. Today, the SLP said they did not need to use the timer at all! He stayed on task for the 5 minutes with no problem! Isn't that absolutely amazing?!
Now our job as the parents is to use the tools they are implementing with him and include that in his daily life for consistency. We haven't been the most consistent in the past, mostly because it's disappointing when he doesn't catch onto something and your patience runs thin at some point after repeating yourself a hundred times in one sitting! But when I see the progress already made with the consistency they are giving him just in 1/2 hour sessions...it will make it so much easier to continue this progress at home as we have seen what he can do with the right tools and the right people!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.