"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Tuesday, August 24, 2010

Are you kidding me?!

http://www.desmoinesregister.com/article/20100824/NEWS02/8240367/3-schools-cited-for-using-restraints-on-unruly-kids

It's not the article that has me thinking there are many, many ignorant and incompetent people out there. It's the comments left by those who have nothing better to do than criticize and degrade children with disabilities and their parents.
I don't expect you to go through and read the over 130 comments that were posted in response to this article when I read it at 2:30pm today, but you can get an idea of what I mean just by glancing over the first 20 or so. My question to all of these "readers" is how many of them have children with disabilities? Words cannot express my disappointment in how some people say that not all "warm bodies" should be allowed in public schools and criticizing this parent for her child's size. If any of these people that are commenting are knowledgeable in the area, they would know that seizure medicine also comes with side effects that can be weight gain and also a child with cerebral palsy is not usually able to be physically active. The other comment that tugged at my heart was that any child can be taught to follow rules and that if a "1 yr old" can do it, then anyone can. That is so not true! I can sit here and make teaching Brycen not to hit or throw things my full-time job, but it does not guarantee he will comprehend the rule taught 5 minutes later. His brain just doesn't have those connections like so many other children with disabilities.
Yes, I agree if a child has shown violent behavior 5 times, the parents do need to take ownership of this and possibly look for more specialized settings. I do believe this is a danger to many other children in this school and the teachers, and the behavior would interfere into others trying to learn. But I completely disagree with the many comments that all of these issues are stemming from everybody wanting to mainstream children with disabilities. If my son was in a classroom with only other children that are non-verbal, how does this teach him or give him examples of communication effectively? He needs to be mainstreamed for at least part of his day so he can see how this works. It's a proven fact that children learn best from each other...so why do some people think that is different for those with disabilities? These children have been dealt more than enough difficult things to deal with in their life, so why do they need more people judging them and their families for things that can often not be controlled? My child did not ask for Autism...I did not choose to have a child expecting him to have Autism...I am not a bad parent for wanting my child to be in the public school setting and in a mainstream classroom. The generalizations these "readers" are making are disgusting and ignorant. It makes me sick to think that this is what my children have to grow up reading...why can't we just accept everybody for who they are? These children are not criminals or murderers and should not be treated like one by being excluded from activities that everybody else in society gets to take part in such as school.

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.