Words cannot express my excitement over what Brycen has been doing the last couple of weeks!! I had a conversation with the SLP in Spencer today during his therapy session and shared what we have been noticing and received some fabulous feedback from her.
Here are the UNPROMPTED words that Brycen has said over the last couple weeks:
Elmo, dada, hat, apple, shoes, juice, blow, go, cow and pop.
The first 6 words were heard at home and the last 4 I heard today during his session with her.
While it is absolutely exciting to hear these words coming out of his mouth (they do not have all the sounds so once again, they are called word approximations), it is over the top that these words have all been used in the appropriate context! That means that every single time he has used these unprompted words, he is using them appropriately!! For example, he was looking in a bag I had packed for Aubree of toys and he pulled out the Elmo stuffed animal and said "Ebo." It wasn't prompted and it was him doing the labeling correctly! Another example is when the SLP sits down on the floor with him with the bubbles and she waits for him to communicate what he wants. He then says blow "bo" to let her know he wants her to blow the bubbles. These are huge, HUGE, HUGE steps in this whole process of teaching him functional communication (I can't emphasize that enough!).
I have been thinking all afternoon about how to explain this to those who are not familiar with autism and any disorder that involves a speech and language delay. I think I have come up with a "story" that explains it best.
When you see or hear something, your body sends a message to your brain and then your brain interprets what you see or hear and then sends a message back to your mouth to respond. With Aubree, I can say a word and she watches my lips and hears what I say, that message is sent to her brain to interpret what she heard/saw, and then her brain sends a message back to her mouth/lips and she then repeats the word I say almost perfectly (her developmental level is right on with her chronological age of 2 yrs 3 months). With Brycen, he may hear or see me saying that word, but when the message is trying to be sent to his brain to be interpreted, his brain cannot "read" the message correctly and then either doesn't submit a message to his mouth or will send a mixed message to his mouth. This results in either no response from him or the sound he will make is completely different than the sound/word that I said. Example: we may ask him to say a word with the sound "m" but he will make the "p" sound.
I am no expert on speech, language, and communication disorders, but I find myself well educated in this area through my education, my research and experience with Brycen, as well as my many years of experience with many other adults and children affected in this area of their lives. To me, it seems like Brycen's brain is missing some of those connections that are in teh brains of neuro-typical children. While it also seems like those connections are trying really hard to interpret and send the correct messages, hence the newer sounds and few unprompted words, the connections aren't staying there which is very frustrating for everybody involved. It's like they disappear!
I hope this all makes sense to you and maybe you can give me some feedback on similar "stories" you know of how this works. The brain is obviously very complex and in all honesty, I HATED science classes in school, but it's different now. I don't really see it as science anymore, I see it as reality and how it is affecting Brycen. I am really curious about what his brain looks like on an MRI now compared to the brain of a neuro-typical child of the same age. Maybe when things settle down in our life, I will contact U of I for more testing in this area. It'll be so nice to live much closer to U of I soon so these things are more feasible to fit with our family lifestyle and work schedules!
"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller
Wednesday, September 15, 2010
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Autism and Our Family
"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!
Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.
We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.
Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.
I loved the way you explained this! His progress is remarkable. Way to go Brycen!
ReplyDeleteThat is wonderful news and must be so exciting! Sierra could not say any consonants at first only vowels, and I get so excited when she learns a new consonant. She has M,P,B,D,N, and T so far.
ReplyDelete