"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Monday, February 16, 2015

Was that a conversation? I think so!

Recently, I've had a hard time explaining Brycen's verbal output.  While he is considered "non-verbal", he is able to say quite a few words & some phrases.  Most don't have all of the sounds, but those who are around him a lot can understand quite a bit of what he says including us, his teachers/associates, & some of our family.  With that said, Brycen is FAR from being able to converse.  Most of our questions to him require indirect (or direct) prompts to get a simple answer.

So that is why I am ecstatic to share what I consider a conversation we had tonight!  So much was "right" with what happened tonight & just shows us how far Brycen has come in the last couple years.

Brycen LOVES bath nights!  He has a routine to how he sets up his toys, the fact we can't start the water until after they are set up, he wants to watch his toys fall over/start to float, wants his identification bracelet off, and THEN he will get into the bathtub.  First is his hair, then his body, lastly is his favorite...play time!  Before bath-time is over, we also do a lot of warning by counting down minutes to him of how much time he has left.  This helps him tremendously with transitioning!  Typically we will do the countdown ourselves, but tonight I decided to turn the tables to see how much he could do on his own.
All clean after bath time!

This is how tonight's bath-time went after our initial routine and a few minutes of play time...

Mommy- "How many minutes, Brycen?"
Brycen, looking at his hands and slowly holding up fingers- "Four more minutes" (word approximations but definitely clearer than even just a couple months ago!)

Mommy, a couple minutes later- "How many minutes left, Brycen?"
Brycen, immediately responding- "Two more minutes."

Mommy leaves the bathroom to go down the hallway.

Brycen, yelling- "Mommy, mommy, mommy!"
Mommy, coming back to the bathroom, surprised that he was seeking me out- "What is wrong?"
Brycen, pointing to the drain stopper- "Brokeeeee"
Mommy fixed the drain- "I fixed it."
Brycen- "Fix it.  More water."
Mommy- "How many more minutes?"
Brycen, pausing for a few seconds & holding up a finger- "One more minute."
Mommy- "Yes, so you don't need more water for one more minute."
Brycen, agreeing & going back to playing- "Yes"


There is so much right with the interaction we had tonight!  First, he was verbalizing with no problems and very little hesitation.  He was connecting what usually is Mommy/Daddy's part of the routine and taking it over himself.  He was counting it backwards on his own.  He yelled for me when he needed help (this is so very rare for him!).  He seemed to understand why he didn't need more water to replace the water that accidentally went down the drain.  And overall, he was conversing back & forth with me!!  It wasn't just one word or one phrase, it was a continual conversation that took place over a few minutes.  My excitement might not be understood by all, but those who have been in our "shoes" and/or have a non-verbal child will completely understand why this is something to document & share!

I hope we have more to share with you soon about our conversations with him!  All of the progress he has made in just a few months is outstanding & it's so hard to keep up with him at times :)





1 comment:

  1. How wonderful!!! So excited for Brycen and for you!!!

    ReplyDelete

Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.