"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Friday, October 8, 2010

Our decision to add medications to Brycen's therapy plan

We knew this day would come...the day we realized we don't have a choice but to start medications for Brycen. It's terrifying to know that you will be putting a different thing in your child's body! But we have also come to the realization that we may be hindering Brycen's progress by not using medication to help with some of his symptoms.

While medication does not cure Autism, it can help to treat some of the symptoms. Brycen's main symptoms that we will be addressing with medication are the sleeping at night (or should I say, not sleeping!), the aggression, lack of attention span, OCD behavior, and impulsiveness. While all kids experience many of these things, the extent of Brycen's symptoms in these areas is huge.

Brycen's aggression is getting worse and what we are doing to address it is not helping, so we need to look at this avenue before he really does harm to Aubree or another child at his school. The last thing I want to hear is that a child is scared of him and they went home to tell their parents that Brycen is hitting them every day. That is not fair to those children, nor is it to Brycen. Since Brycen has very little attention span for many things, this makes it very difficult to teach him new things or work on daily skills such as getting dressed, taking turns, listening to an entire book, etc. We are hoping if we can increase his attention span, that we will have more luck with teaching him new things and his focus will be better on learning. We are also thinking if we can minimize his stimming behavior, we can bring out some more language. It seems his flapping, scratching, lining up toys is interfering into so many daily things, including his ability to work on speech and sign language.

We have set up an appointment at the medical clinic here to have them evaluate Brycen and see if they feel comfortable working with us on starting these. I really feel it would be easier if a local doctor will help since if there is an interaction or side effect, it can be addressed right away without us having to make a trip or navigate the phone calls to U of I.

The thing that scares me about medications with him, is studies have shown that children with Autism sometimes have very odd side effects of the medication. While a medication that is prescribed to calm someone down may work in a neurotypical child and adult, it may do the opposite and make a child with autism more hyper.

The other things that scare me is a lot of medications for these symptoms have not been studied in children with autism, or even any child for that matter. The common medication for sleeping in children with autism is called Clonidine. This is an adult medication for high blood pressure. Interesting, huh? But that just shows that medications do different things to people with other developmental issues.

I'm realizing that every thing we start, whether it is medication or a new therapy, I am always going to be scared. It's human nature to be scared of the unknown, but we aren't going to know if there are also positive benefits unless we try. Right now is the time to try. Brycen has adjusted well to all of the change in his life these last couple weeks. We feel we have great support right now from our families being much closer to us, a school that seems to be on our side with helping him learn, therapists that want to help him, a Case manager that has so many resources to share...what better time than now!

1 comment:

  1. When we went to IC for Kurt's evaluation they gave us the name of a specialist there that could help us with medication. They said she'd prescribe and monitor but insist on your local doctor monitoring regularly. Maybe if yours doesn't feel comfortable deciding what to prescribe they'd at least work with IC to monitor it so you don't always have to go that far.

    ReplyDelete

Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.