"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Thursday, June 17, 2010

Occupational Therapy: A whole different world for us

I, of course, have heard about occupational therapy for many, many years in my field of work, but until yesterday and since I started reading "The Out-of-Sync Child", I just never knew how much OT's actually work on and how much these things can affect a child.
I listened with awe yesterday to the questions and comments from the Occupational therapist that evaluated Brycen and will be working with him. While most people think of fine motor skills and learning to adapt to the world around them when someone mentions OT, I learned there is so much more to this.
If you have watched Brycen eat, he drools almost at every meal and snack. Did you know that could mean his oral motor muscles are not developed enough and need work to become stronger?
Brycen has always had an issue with choking on food and gagging. She said the reason he may only chew his food a little bit is because his muscles in chin and mouth get tired of chewing so he just swallows, hence the choking. Most people can leave their almost 4 yr old child while eating and go to another room, but we can't do this for fear of this exact reason.
While Brycen seems to be on track with fine motor skills, they will be testing his grasp and the way he uses utensils, etc to see if that needs any help.
They are also looking at the reasons Brycen chooses to eat the foods he does and refuses others, whether it is color, texture, temperature, etc. So now I am keeping a food log for the next few days with what he is given, how much he eats, etc. This will also be helpful for nutritional purposes as Brycen is very low on the percentage of his weight compared to his height and head size.
I am very grateful for their help in these next areas of loud noises, teeth grinding, and oversensitive to various touch such as during a haircut or during brushing teeth. She said they are going to work on desensitizing the areas first with different techniques. With the teeth grinding, we are going to try to replace this with another sensory seeking item. We have noticed he doesn't grind when he is doing a lot of jumping, running, or at the park climbing, but he will frequently grind during meal times or when he seems "bored" and "stimming." So obviously, he is not seeking some kind of oral sensory, but needs something else to "distract" him. I hope that makes sense!
So, I knew Brycen had some sensory issues, but I guess I never realized how much there is to work on in addition to his speech and communication, appropriate play and socialization, sleep issues, aggression, and many more. The list of things we work on every day just keeps growing and I am learning so much about why he does the things he does and what we can do to help him in these areas.
We are now tacking on two OT appts per week in addition to our 3 speech...luckily they will be back-to-back appts so we don't have to drive there more than 3 times per week...but it's just exhausting thinking about it!

1 comment:

  1. I had to laugh when I read about him being under weight, I think him and Ethan are the same way. The poor kid is only 55 pounds and can't keep any pants up. I think he could wear 2T waist if only they came longer. Paul always teases him and tells Ethan just to wait until he is 30 and it will catch up to him. I can only dream of having that problem of not keeping my pants up around the waist. I just pray that every time I put them on they did not get too small. Keep up the great work Brycen!!!

    ReplyDelete

Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.