"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Wednesday, June 23, 2010

Shopping with Brycen

This is probably a very misleading title as I am guessing most of you thought I was going to tell you how hard it is to shop with him...and though some of the parts of shopping can be hard with him just like with any child (waiting in line to pay), Brycen can actually be quite pleasant while at the store when it is just he and I.
So, we ventured out to Wal-mart last night to get a few small things. He definitely didn't appreciate the few minutes by the greeting cards and decided to plop down on the floor and start crawling away from me. I chose not to use a cart since it is just the two of us and he needs to eventually learn that wandering away is not ok (in the cart, he actually sits very well in the front basket the entire time!). So after we find our items, I allow him to look at the toy aisles if he has been good and if we have time.
I absolutely love the look on his face when he spots the part of the section with his favorite...Thomas the train! He flaps, jumps up and down, and smiles the entire time while he scrutinizes each package that is at eye level and below. He never even touches unless we show him that you can push a button for a noise or something.
The good thing about all of this...he doesn't even understand that these toys can be bought...so while other children his age are crying in the aisles when they want something and their parents don't buy it, he just continues his flapping and joyful smile (sometimes a little giggle if a toy makes a noise). So, his lack of understanding in this situation is definitely a blessing in disguise for us!

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.