"When one door of happiness closes, another opens;
but often we look so long at the closed door that we do not see the one which has opened for us."
Helen Keller

Wednesday, June 9, 2010

Our "out-of-sync" child...sensory issues

It doesn't take a rocket scientist to see that Brycen has many sensory issues. While Sensory Processing Disorder is separate from Autistic Disorder, most children on the spectrum have some types of sensory issues that fall under Sensory Processing Disorder. These two can go hand-in-hand, or one can be seen without the other.
I bought "The Out-of-Sync Child" book a couple months ago and have decided it is time to start educating myself on these sensory issues that Brycen is facing. This is one area that I really don't have much experience and will need to rely entirely on the Occuptional Therapist for guidance. His sensory issues have increased over the last year, and have been very noticeable the last few weeks. We all have sensory issues, but when it starts to affect your daily life and interfere with growth in other areas, then it becomes a whole other obstacle...which is where we are with Brycen right now.
His SLP spoke with me after his speech therapy this morning and said that his grinding is getting worse, which we completely agree with. She noticed when she had him in the swing, he wasn't doing it, but as soon as they transitioned out of the swing, he began grinding. She gave him a chewable toy, but he had no interest in that (just like he doesn't have interest in his chewable Thomas toys at home anymore...unless he is lining them up). So, she attempted to replace the sensory mouth issue with some other sensory input by giving him rubbery balls to play with. She said this helped out a little. The balls they use are actually chew toys for dogs, and that probably sounds crazy to some people, but they are very durable and have both the texture and smoothness that most children with sensory issues crave. The use of these will encourage him to squeeze them in his hand or rub them up and down his arms/legs to gain similar sensory input without the damage to his teeth.
This "talk" led me to call the doctor for yet another order to be faxed for therapy and we now have an Occupational Therapy assessment scheduled for next Wednesday after his speech therapy.
While beginning to read this book, I have found some definite sensory issues Brycen has in the following areas: "overresponsive" to sights, sounds, and tastes, as well as "sensory-seeking" to touch, movement/balance, and body position/muscle control. I'm curious if my understanding of this and from identifying these areas of concern for Brycen are similar to what the assessment will show next week.

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Autism and Our Family

"Autism"----It's one word that can change the life of a child and family in so many ways. Autism Spectrum Disorders are being diagnosed at a rate of 1 in 68 children currently. If you do not already know someone that has been diagnosed, the statistics say it won't be long before you do.

Our son developed typically until around the time he turned 2 years old. We heard words...we saw him play with other kids...we watched as he played with his toys appropriately...we made eye contact with him...overall we understood his wants and needs. In a matter of a few months, that was all taken away from him. He began lining up toys, lost all of his words and signs except for one word "ball", ignored other kids, could not sleep through the night, lost eye contact and the ability to follow directions, and he had no way of letting us know what he wanted or how he felt. It was heartbreaking to see something happening to our child that we couldn't stop!

Brycen began receiving home therapy 1-2 times per month for about 6 months before we realized it wasn't just developmental delays. We knew it was Autism...we just didn't want to say it outloud to anyone. He was officially diagnosed with Autism (classic form and regressive), as well as Mental Retardation in August 2009 by the University of Iowa Hospitals and Clinics.

We continue to learn as we make our way through this journey with Brycen and we will continue to share this journey with you on this blog! The blog has been a great therapy for us to be able to vent our frustrations and struggles with accepting that we have a child with special needs, while sharing how blessed we are to have a child teach us what life truly means. It has also been a great way to inform others of his progress and changes over the last couple of years.

Thank you for your support of Brycen and our family! We hope you are able to learn something through this blog no matter if you are a parent of a child with special needs or a neurotypical child, a teacher or therapist, a family member, or just someone that is interested in the journey that a family goes on as they learn their child is battling a life-long disorder.